Tanzania has the highest number of people with albinism in the world, approximately one in every 1429 births, a much higher rate than in any other nation. We are estimated to have 34 000 people with albinism in Tanzania but due to the weather condition all are at risk of skin cancer.
Albinism is a rare group of genetic disorders that cause the skin, hair, or eyes to have little or no colour (Melanin). Therefore the lack of melanin and exposure to intense ultraviolet radiation increases the risk of developing skin cancer. Sunscreen, Hats, and covering up are great ways to prevent skin cancer but unfortunately not enough knowledge is spread about the matter. Cheliva Foundation focuses on educating people on how they can preserve their skin through workshops and seminars as well as work with individuals to collect cloths and sun protection gear for those incapable of purchasing, we have realised that in rural Tanzania most people are unaware of what damage the sun can do and due to low income they can't afford sunscreen . Through clinics we prevent and treat skin cancer alongside our partners and dermatology team.
You can be part of this cause by:
Donating towards the purchase of health insure for persons with albinism
Donating Sunscreen, Hats, Sunglasses, and sun friendly clothing
Majority of people with albinism in Tanzania study in hardship or don't study at all due to unfriendly environments, because of the lack of melanin visual impairment is normal but in schools they are forced to either sit on the floor or borrow notes from their fellow as a result school becomes a chore and not something students enjoy.
Technology has grown throughout the years and we believe it can be used to make the learning experience easier and better for all. We have come up with a pack fit for primary and secondary kids that contains stationary and sun protection gear called Edu Pack the whole pack costs TSH 160,000
Also we are planning on building a school that will contain the needed technology to ensure comfortable learning. The aim is to get more and more people with albinism in school, knowledge is powerful. The school will contain clinics, playground and dorm rooms to accomodate students from everywhere. We plan on knowledge classes that will teach both people with albinism and people without about this condition showing how normal it is.
You can be part of this cause by:
Encouraging the education of a person with albinism by assisting in school fees payments
Lending a hand in building the school, whether materialistic or monetary
We live in a world whereby we need to make a living to eat and we need to eat to make a living, people with albinism in the rural areas farm for a living putting themselves in a huge risk of attaining skin cancer, while it is the most common way of life it isn't advised for people with albinism.
We started our research in Nanyumbu Mtwara and discovered that they have no knowledge on how to preserve their skin and they choose to farm as it is the fastest way to earn a living, though open to change they need training and capital to get started. We decided that every region in Tanzania deserves the same research in order to assist more people. Farmers are important to us but farming in this condition is slow death and we all can take part in saving lives, How?
Volunteering to train and raise upcoming talents of People with albinism
Donating equipment where applicable for the new businesses chosen
In our society we see albinism as a disease or disability therefore making the people involved less confident and inferior, as a society we need to understand the situation before we create an even bigger problem. People with albinism are said to be mythical creatures that can give you riches and because of that people hunt them down and cut off their body parts selling them to traditional healers.
Our aim is to create understanding, the truth is people with albinism lack melanin and are visually impaired that's it, anyone can be visually impaired and pale that does not enable them from anything. Society needs to unite and take a stand to give people with albinism a chance to be free with no questions, no restrictions and no weird curiosity. How?
By accommodating people with albinism in every sector that is welcoming to their situation
By teaching them while they are young that everyone is equal and should be treated as such
By not staring or using albinism as experiment for unnecessary human behaviour
By being understanding and standing together to make everyone understand