OF OUR GOAL
How It Started
Albinism is a rare group of genetic disorders that cause the skin, hair, or eyes to have little or no color. Albinism is also associated with vision problems, according to statistics Tanzania has the most people with albinism in the African continent and unfortunately most of those people are uneducated about their condition resulting in poor skin care, sunburns and poverty.
So being that Cheliva Foundation founders have albinism we took it upon ourselves to learn more about the illnesses and dangers that affect people with albinism and see how we can assist. On 13/06/2020 we started raising funds to assist twins with signs of skin cancer on their heads and thanks to your help we managed to take them to KCMC Hospital for treatment and back, their recovery gave us hope to assist more PWA for a healthier community.
Heal the nation is aimed at saving people with albinism from the consequences of the sun, mainly skin cancer and signs thereof. Our aim is to provide more than sun protection gear such as sunscreen, sunglasses and hats but we aim at offering medical attention, consultation and education regarding skin care and albinism as a whole. Why Albinism?
They are regarded as disabled when their ability is limitless
They are still considered as mythical beings and are still misunderstood
Skin cancer can be prevented and people with albinism are more in danger of it.
Cheliva Foundation’s founders have albinism and would like to shade a positive light to people like them
Besides merely handing out sun protection gear, we plan on educating the public about this condition and shading light to PWA to take care of themselves physically preserving their skin. We also are on a mission to partner with different dermatological hospitals to make treatment easier for the Albinism community.
Learn about the activities and projects we have been involved in and done.
For the love of kids
We had a generous donation of kids toys and clothing from a Turkish friend of Cheliva, she had a wish of making kids with albinism smile and be joyful during the festive season. She donated toys; clothing; colouring books and story books for kids aged 0 - 12 yrs, so we created a fun day for them wereby we arranged games and activities for them and invited the Turkish ambassedor H.E Dr. Mehmet Gulluoglu to join in. He brought turkish soccer jersies and a ball that led into a soccer match and laughter and more fun from the kids.
Every kids love language is simply fun and games, we too love games and believe learning begins at the playground, every donation counts and we make sure it reaches the intended goal.
International Albinism Awareness Day 2022
International Albinism Awareness Day is celebrated annually on June 13 to celebrate the human rights of persons with albinism worldwide. This years theme is our voices will be heard and as Cheliva Foundation we planned on making sure their voices were heard; on this day we had a dialoge at JNICC where we had 4 Panelists: Dr Isaac Maro MD, MPH, PHD, a senior Medical Correspondant Afya Check media programs; Mr Noel Mtafya Former UDSM student president and youth advocate; Mr Vilali Maembe a chanjo music artist and honorable Diana Chande AU - Youth Ambassador for peace on eastern regional zone as our guest of honor.
Each panelist shared their experiences and views on what they had in mind for people with albinism and the attendees got comfortable and asked questions creating debates and heated discussions throughout the event. One of our biggest achievements on this day was realising that because this community is termed "disabled" they struggle in moving forward as society has given them reason to be dependent. Disability is a disadvantage or handicap and albinism is a congenital absence of pigment in the skin and hair (which are white) and the eyes (which are usually pink), therefore is albinism really a disability or just a condition?
During the cause of the day we managed to discuss the varies challenges and solutions surrounding albinism and through that strategies and plans where formulated on the way forward for future development, the work ahead is not easy but the unity seems promising.
We were sponsored by JNICC, ATSOKO, Pepsi, and Hill Water
International Albinism Awareness Day 2021
International Albinism Awareness Day is celebrated annually on June 13 to celebrate the human rights of persons with albinism worldwide. The theme this year is still standing strong and we joined Tanzania Albinism Society in the annual exhibition. At our booth we had Hats sponsored by Utu Kwanza as well as clothing, and shoes, on the final day of the exhibition we had the honor of being joined by the former Turkish ambassador Honorable Ali Davutoglu and wife who brought presents to everyone that visited our booth.
It was an eye opener as we collaborated with Standing Voice there and then to ensure that after treatment they come straight to our booth for consultations and gifts, the events guest of honor Honorable Ummy Nderiananga deputy minister primisters office (Parliamentary; Policy and Coodination) visited our booth and we handed her a hat as a symbol for our appreciation for the hard work she has done, we had further conversations concerning our needs, fears and hopes as people with albinism.
Every year is a step forward and we believe in small steps that make a huge impact